Original Research

Quality of life and its predicting factors for Tunisian children with cerebral palsy

Ghanmi Marwa, Sahbi Mtawaa, Emna Toulgui, Rihab Moncer, Walid Wannes, Khaled Maaref, Sonia Jemni
African Journal of Disability | Vol 11 | a1046 | DOI: https://doi.org/10.4102/ajod.v11i0.1046 | © 2022 Ghanmi Marwa, Sahbi Mtawaa, Emna Toulgui, Rihab Moncer, Walid Wannes, Khaled Maaref, Sonia Jemni | This work is licensed under CC Attribution 4.0
Submitted: 24 March 2022 | Published: 15 December 2022

About the author(s)

Ghanmi Marwa, Department of Physical Medicine and Rehabilitation, Faculty of Medicine of Monastir, University Hospital Sahlou, Sousse, Tunisia
Sahbi Mtawaa, Department of Physical Medicine and Rehabilitation, Faculty of Medicine of Sousse, University Hospital of Kairouan, Kairouan, Tunisia
Emna Toulgui, Department of Physical Medicine and Rehabilitation, Faculty of Medicine of Sousse, University Hospital of Sahloul, Sousse, Tunisia
Rihab Moncer, Department of Physical Medicine and Rehabilitation, Faculty of Medicine of Sousse, University Hospital of Sahloul, Sousse, Tunisia
Walid Wannes, Department of Physical Medicine and Rehabilitation, Faculty of Medicine of Sousse, University Hospital of Sahloul, Sousse, Tunisia
Khaled Maaref, Department of Physical Medicine and Rehabilitation, Faculty of Medicine of Sousse, University Hospital of Sahloul, Sousse, Tunisia
Sonia Jemni, Department of Physical Medicine and Rehabilitation, Faculty of Medicine of Sousse, University Hospital of Sahloul, Sousse, Tunisia


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Abstract

Background: Cerebral palsy (CP) can cause motor, sensory, perceptual, cognitive, communication and behavioural disorders. The complexity of this condition justifies measuring the quality of life (QOL) of children with CP. This measurement depends on personal and socio-economic factors, hence the relevance of performing it in our cultural context of Tunisia.

Objectives: The objectives of this study were to assess the QOL of Tunisian children with CP and to identify predictive factors for QOL.

Method: A cross-sectional study using a self-administered questionnaire (the CP QOL-Child) was employed. It included 68 children with CP and their parents who consulted the outpatient clinics of Physical Medicine and Rehabilitation of the University Hospital of Sahloul Sousse.

Results: The QOL of children with CP was altered, and the mean total score for the CP QOL-Child was 59.3 (± 14). All domains were affected by this alteration. Six predictive factors for lowered QOL in children with CP were identified, namely age older than 6 years, swallowing disorders, more intense chronic pain, greater level of motor impairment, the use of botulinum toxin injection and the absence of verbal communication.

Conclusion: Intervention with children with CP must be mindful of their altered QOL. Five out of the six predictive factors of QOL are modifiable through a multidisciplinary approach within the framework of the International Classification of Functioning, Disability and Health (ICF).

Contribution: The multiplicity of the factors associated with QOL revealed by this study incites clinicians to adopt the ICF approach by displaying its practical implications on the efficiency of the medical intervention.


Keywords

cerebral palsy; quality of life; CP QOL-Child questionnaire; child; ICF.

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