Original Research

Family functioning and stroke: Family members’ perspectives

Sibulelo Gawulayo, Charlene J. Erasmus, Anthea J. Rhoda
African Journal of Disability | Vol 10 | a801 | DOI: https://doi.org/10.4102/ajod.v10i0.801 | © 2021 Sibulelo Gawulayo, Charlene J. Erasmus, Anthea J. Rhoda | This work is licensed under CC Attribution 4.0
Submitted: 17 September 2020 | Published: 25 October 2021

About the author(s)

Sibulelo Gawulayo, Department of Social Work, Faculty of Community and Health Sciences, University of the Western Cape, Cape Town, South Africa
Charlene J. Erasmus, Centre for Interdisciplinary Studies on Children, Families and Society, Faculty of Community and Health Sciences, University of the Western Cape, Cape Town, South Africa
Anthea J. Rhoda, Department of Physiotherapy, Faculty of Community and Health Sciences, University of the Western Cape, Cape Town, South Africa

Abstract

Background: Stroke survivors often experience permanent or temporal physical and psychological stroke impairments. As a result, stroke survivors are often discharged to recover in their home environments and are cared for mostly by family members. Additionally, caregiving roles are often assumed without any formal training or preparation whatsoever. This can transform the family’s functional patterns due to adjustments that are made to accommodate the caregiving needs.

Objectives: To explore the experiences and influence of stroke on families and on family functioning.

Method: Explorative descriptive qualitative research design through the use of in-depth interviews were employed as the means of data collection. The sample size was eight (8) family members and was guided by the saturation point. Data was thematically analysed.

Results: Four themes emerged from the analysis: 1) reduced interactions with family members due to communication barriers, 2) the influence of stroke on family relationships, 3) emotional engagement in caring for a family member with a stroke and 4) financial implications of stroke on family functioning. This study found that stroke can influence the family functioning negatively as family members may be forced to change their functional patterns. However, some family members reported positive experiences, they developed a supportive structure to accommodate the new life of the stroke survivor.

Conclusion: Using the McMaster’s model of family functioning, this study found that stroke is a threat to the six dimensions of family functioning: 1) problem-solving, 2) communication, 3) roles, 4) affective responsiveness, 5) affective involvement, and 6) behaviour control.


Keywords

stroke; stroke survivor; stroke impairments; activities of daily living (ADL); family members; family functioning and dimensions

Metrics

Total abstract views: 5586
Total article views: 9961

 

Crossref Citations

1. “ It’s just a life skill”: Speech-language pathology students’ perspectives of mental health first aid training
Elizabeth Hill, Phoebe Hu-Collins, Victoria Bishop, Kristen Marr, Brooke Ryan
International Journal of Speech-Language Pathology  first page: 1  year: 2026  
doi: 10.1080/17549507.2026.2620422

2. Family Functioning is Associated with Post-Stroke Depression in First-Ever Stroke Survivors: A Longitudinal Study
Xiao Wang, Cai-Xia Hu, Man-Qiu Lin, Shu-Ying Liu, Fen-Yan Zhu, Li-Hong Wan
Neuropsychiatric Disease and Treatment  vol: Volume 18  first page: 3045  year: 2022  
doi: 10.2147/NDT.S393331

3. Using the International Classification of Functioning, Disability, and Health (ICF) to explore the experiences of family caregivers of stroke survivors in Burkina Faso: a qualitative study
Fatimata Ouédraogo, Gbètogo Maxime Kiki, Abdoul Karim Ouaré, Timothé Guiguemdé, Orokiatou B. Zanga, Pegdwendé A. Kaboré, Orthelo Léonel Gbètoho Atigossou
Disability and Rehabilitation  vol: 47  issue: 20  first page: 5287  year: 2025  
doi: 10.1080/09638288.2025.2477281

4. Family quality of life after brain injuries: a qualitative study on the perspectives of family members
José Luis Castillo, Alba Aza, María Fernández, Mari Storli Rasmussen, Nada Andelic, Miguel Ángel Verdugo
Quality of Life Research  vol: 34  issue: 9  first page: 2701  year: 2025  
doi: 10.1007/s11136-025-04011-z

5. A Bibliometric Analysis of Stroke Caregiver Research from 1989 to 2022
Mohd Azmi Bin Suliman, Tengku Muhammad Hanis, Mohd Khairul Anwar Kamdi, Mohd Ismail Ibrahim, Kamarul Imran Musa
International Journal of Environmental Research and Public Health  vol: 20  issue: 5  first page: 4642  year: 2023  
doi: 10.3390/ijerph20054642

6. A Phenomenological Study of Javanese Family Caregivers’ Perspectives on Caring for Stroke Survivors
Sukma Cahya Ramadhan, Yurike Septianingrum, Rusdianingseh , Nety Mawarda Hatmanti, Andikawati Fitriasari, Andis Yuswanto
Pacific Rim International Journal of Nursing Research  vol: 30  issue: 1  first page: 58  year: 2025  
doi: 10.60099/prijnr.2025.275670

7. Optimisation of the role of families of chronic hypertension patients based on the mcmaster model of family functioning in self-care agency
Jujuk Proboningsih, Sriyono Sriyono, Rini Ambarwati, Sri Hardi Wuryaningsih, Anita Joeliantina
Jurnal Ners  vol: 20  issue: 2  first page: 173  year: 2025  
doi: 10.20473/jn.v20i2.65083

8. Multifaceted support for caregivers of stroke patients to meet the dynamic needs of patients: A qualitative study
Kobra Noorian, Reza Masoudi, Leila Rafiee-Vardanjani, Shahram Etemadifar, Leili Rabiei, Mehri Doosti-Irani
Journal of Education and Health Promotion  vol: 14  issue: 1  year: 2025  
doi: 10.4103/jehp.jehp_1776_23

9. Correlation Between Family Functioning and Health Beliefs in Patients with Stroke in Beijing, China
Lingli Zhang, YaoYa Shu, Chunjie Han, Jihong Liu
Journal of Multidisciplinary Healthcare  vol: Volume 16  first page: 1067  year: 2023  
doi: 10.2147/JMDH.S394396

10. Development of the Family-Based Care Model for Stroke Survivors to Promote Healthy Family Dynamics: Participatory Action Research
Piyarat Chaknum, Teeranut Harnirattisai, Chomchuen Somprasert, Li-Chi Chiang
Pacific Rim International Journal of Nursing Research  vol: 27  issue: 2  first page: 244  year: 2023  
doi: 10.60099/prijnr.2023.262033

11. Exploring the lived experiences of family caregivers of patients with stroke in Africa: a scoping review of qualitative evidence
Mawukoenya Theresa Sedzro, Laura Murray, Anna Garnett, Nouvet Nouvet, Keren Kankam, Peace Fiadzomor
Brain Injury  vol: 38  issue: 5  first page: 390  year: 2024  
doi: 10.1080/02699052.2024.2310798

12. Self-actualization of families with a cerebrovascular disease patient by nurses, and of self-actualization of nurses themselves: an integrative review based on family care/caring theory
Hiroko Ota, Naohiro Hohashi
BMC Nursing  vol: 24  issue: 1  year: 2025  
doi: 10.1186/s12912-025-02731-8

13. Longitudinal analysis of an actor-partner interdependence model of recurrent fear and depressive symptoms in elderly patients and caregivers after postoperative adjacent vertebral refracture: a prospective longitudinal study in China
Peipei Du, Yan Chen, Xianxian Zhong, Rui Li
BMJ Open  vol: 15  issue: 12  first page: e103270  year: 2025  
doi: 10.1136/bmjopen-2025-103270