1. Community‐Based Interventions Improve the Quality of Life for Children Living With Disabilities, Zambia
Mezan Ghebre, Renee Hepperlen, Jennifer Biggs, Edgar Lunda, Watson Mwandileya, Paula Rabaey, Mary O. Hearst
Child: Care, Health and Development  vol: 52  issue: 1  year: 2026  
doi: 10.1111/cch.70203

2. Burden, impact, and needs of caregivers of children living with mental health or neurodevelopmental conditions in low-income and middle-income countries: a scoping review
Temitope Ademosu, Ikenna Ebuenyi, Rosa A Hoekstra, Martin Prince, Tatiana Salisbury
The Lancet Psychiatry  vol: 8  issue: 10  first page: 919  year: 2021  
doi: 10.1016/S2215-0366(21)00207-8

3. Starting a cultural collective for mothers of children with disabilities: A case study
Solfrid Raknes, Siv Elin N. Sæbjørnsen, Hege C. Aarlie, Thrine Marie N. Bromstad, Mariana J. Makuu, Caroline Yamala, Sarah Hean
African Journal of Disability  vol: 13  year: 2024  
doi: 10.4102/ajod.v13i0.1367

4. The black hole of dealing with a disability diagnosis: Views of South African rural parents
Vuyelwa V. Duma, Ntombekhaya Tshabalala, Gubela Mji
African Journal of Disability  vol: 10  year: 2021  
doi: 10.4102/ajod.v10i0.951

5. Exploring parent and service provider expectations for children with autism or intellectual disability: A two-country follow-up study
Melissa Washington-Nortey, Adote Anum, Zewelanji Serpell, Yaoying Xu, Ioana Rusnac
Journal of Intellectual & Developmental Disability  first page: 1  year: 2025  
doi: 10.3109/13668250.2025.2508620

6. Caregivers’ and parents’ explanatory models of intellectual disability in Khayelitsha, Cape Town, South Africa
Siyabulela Mkabile, Leslie Swartz
Journal of Applied Research in Intellectual Disabilities  vol: 33  issue: 5  first page: 1026  year: 2020  
doi: 10.1111/jar.12725

7. The Effect of Parent’s Family Life Quality Levels on Children’s Parent-Child Relationship in Children with Developmental Disability
Ömer ALPGAN, Erhan ALABAY
Kastamonu Eğitim Dergisi  vol: 29  issue: 4  first page: 219  year: 2021  
doi: 10.24106/kefdergi.823157

8. Coronavirus Disease Vaccination Among Persons With Disabilities: Understanding Vaccine Perceptions and Hesitancy in Ghana
Maxwell Peprah Opoku, Shashidhar Belbase, Fred Adusei Nsowah, Kwame Yeboah, William Nketsia, Ahmed Mohamed, Elvis Agyei-Okyere, Michael Amponteng, Reuben Saah, Mohammed Safi
The Linacre Quarterly  vol: 90  issue: 4  first page: 452  year: 2023  
doi: 10.1177/00243639231178626

9. Disparities in Accessing Sexual and Reproductive Health Services at the Intersection of Disability and Female Adolescence in Tanzania
Virpi Mesiäislehto, Hisayo Katsui, Richard Sambaiga
International Journal of Environmental Research and Public Health  vol: 18  issue: 4  first page: 1657  year: 2021  
doi: 10.3390/ijerph18041657

10. African families’ and caregivers’ experiences of raising a child with intellectual disability: A narrative synthesis of qualitative studies
Siyabulela Mkabile, Kathrine L. Garrun, Mary Shelton, Leslie Swartz
African Journal of Disability  vol: 10  year: 2021  
doi: 10.4102/ajod.v10i0.827

11. Ein Kind mit Behinderung in der Familie: ein positiver Ansatz
Theodosia-Chrysoula Tzina, Lucia Kessler-Kakoulidis, Aikaterini Dimoula, Spyridon-Georgios Soulis
Behindertenpädagogik  vol: 63  issue: 3  first page: 211  year: 2024  
doi: 10.30820/0341-7301-2024-3-211

12. Long-term services and support for older individuals with intellectual and developmental disabilities in Africa: a systematic review
Akwasi Adjei Gyimah, Katherine M. Abbott, Eric Frimpong, Mathias Adjei
Cogent Public Health  vol: 11  issue: 1  year: 2024  
doi: 10.1080/27707571.2024.2357920

13. Perceptions and experiences of stigma among parents of children with developmental disorders in Ethiopia: A qualitative study
Bethlehem Tekola, Mersha Kinfe, Fikirte Girma, Charlotte Hanlon, Rosa A. Hoekstra
Social Science & Medicine  vol: 256  first page: 113034  year: 2020  
doi: 10.1016/j.socscimed.2020.113034

14. Feeling of grief and loss in parental caregivers of adults diagnosed with intellectual disability
María Inmaculada Fernández‐Ávalos, María Nieves Pérez‐Marfil, Rosario Ferrer‐Cascales, Francisco Cruz‐Quintana, Manuel Fernández‐Alcántara
Journal of Applied Research in Intellectual Disabilities  vol: 34  issue: 3  first page: 712  year: 2021  
doi: 10.1111/jar.12842

15. Family quality of life and children with disability in Ethiopia: The role of support providers
Julia Jansen-van Vuuren, Solomon Dawud, Rosemary Lysaght, Beata Batorowicz, Heather M. Aldersey
African Journal of Disability  vol: 12  year: 2023  
doi: 10.4102/ajod.v12i0.1124

16. Stigma and Forgiveness in Ghanaian Mothers of Children with Autism Spectrum Disorders (ASD)
M. Oti-Boadi, E. Dankyi, C. O. Kwakye-Nuako
Journal of Autism and Developmental Disorders  vol: 50  issue: 4  first page: 1391  year: 2020  
doi: 10.1007/s10803-020-04366-x

17. Prevalence of Severe Disability and Its Associated Factors in Northwestern Ethiopia: Evidence From Dabat District of Amhara National Regional State
Solomon Mekonnen Abebe, Mikyas Abera, Ansha Nega, Zemichael Gizaw, Mulugeta Bayisa, Solomon Fasika Demissie, Molalign Belay, Abel Fekadu, Wondwossen Wakene, Getachew Azeze Eriku
International Journal of Public Health  vol: 70  year: 2025  
doi: 10.3389/ijph.2025.1607816

18. An exploration of an ethics of care in relation to people with intellectual disability and their family caregivers in the Cape Town metropole in South Africa
Judith Anne McKenzie
Alter  vol: 10-1  first page: 67  year: 2016  
doi: 10.1016/j.alter.2015.12.001

19. Education and healthcare services for children and young people with intellectual disability in Vietnam: an ecological systems analysis
Giang Thi-Huong Le, Fiona Rillotta, Sally Robinson
Disability and Rehabilitation  vol: 47  issue: 8  first page: 2084  year: 2025  
doi: 10.1080/09638288.2024.2390664

20. Transition of adolescents with intellectual disability from schools for learners with special educational needs: Parents views for the preparedness
Rakgadi Grace Malapela, Gloria Thupayagale‐Tshweneagae, Yohana Mashalla
Journal of Applied Research in Intellectual Disabilities  vol: 33  issue: 6  first page: 1440  year: 2020  
doi: 10.1111/jar.12771

21. The Impact of Lifelong Family Care on Family Caregivers’ Perceptions of the Sexuality of Young Adults with Intellectual Disabilities in the Western Cape of South Africa
Callista K. Kahonde, Judith McKenzie, Nathan J. Wilson
Sexuality and Disability  vol: 38  issue: 1  first page: 95  year: 2020  
doi: 10.1007/s11195-019-09595-2

22. Traditional healers’ explanatory models of intellectual disability in Cape Town
Siyabulela Mkabile, Leslie Swartz
Transcultural Psychiatry  vol: 59  issue: 3  first page: 263  year: 2022  
doi: 10.1177/13634615211055967

23. Experiences of parents of an adolescent with intellectual disability in Giyani, Limpopo province, South Africa
Tsakani Chauke, Marie Poggenpoel, Chris P.H. Myburgh, Nompumelelo Ntshingila
Health SA Gesondheid  vol: 26  year: 2021  
doi: 10.4102/hsag.v26i0.1538

24. Pre-service healthcare professionals attitudes and self-efficacy towards individuals with intellectual disability in Ghana
Maxwell Peprah Opoku, Hala Elhoweris, Michael Amponteng, William Nketsia, Eric Lawer Torgbenu, Reuben Saah
BMC Medical Education  vol: 23  issue: 1  year: 2023  
doi: 10.1186/s12909-023-04697-0

25. Medical and Educational Assistance Provided by Family Members for Children with Invisible Disabilities
Barani Daran S.
Institutionalised Children Explorations and Beyond  vol: 12  issue: 2  first page: 216  year: 2025  
doi: 10.1177/23493003251357046

26. The experiences of parents raising children with developmental disabilities in Ethiopia
Bethlehem Tekola, Mersha Kinfe, Fikirte Girma Bayouh, Charlotte Hanlon, Rosa A Hoekstra
Autism  vol: 27  issue: 2  first page: 539  year: 2023  
doi: 10.1177/13623613221105085

27. Mothering Children with Neurological Disability: Focus on Vhembe Rural Community South African
Sadiki Marubini Christinah, Maguvhe Mbulaheni Obert
Journal of Education, Society & Multiculturalism  vol: 6  issue: 1  first page: 155  year: 2025  
doi: 10.2478/jesm-2025-0009

28. Relational, Ableist and Gendered Sites of Violence: Perspectives of Tanzanian Girls With Disabilities on Access to Sexual and Reproductive Health Services
Virpi Mesiäislehto
Forum for Development Studies  vol: 51  issue: 1  first page: 25  year: 2024  
doi: 10.1080/08039410.2023.2264857

29. Family Quality of Life and Support: Perceptions of Family Members of Children with Disabilities in Ethiopia
Julia Jansen-van Vuuren, Rosemary Lysaght, Beata Batorowicz, Solomon Dawud, Heather Michelle Aldersey
Disabilities  vol: 1  issue: 3  first page: 233  year: 2021  
doi: 10.3390/disabilities1030018

30. Ghanaian traditional and faith healers' explanatory models of intellectual disability
Lily Kpobi, Leslie Swartz
Journal of Applied Research in Intellectual Disabilities  vol: 32  issue: 1  first page: 43  year: 2019  
doi: 10.1111/jar.12500

31. Simple ideas that work: Celebrating development in persons with profound intellectual and multiple disabilities
Ann Bullen, Rosemary Luger, Debbie Prudhomme, Martha Geiger
African Journal of Disability  vol: 7  year: 2018  
doi: 10.4102/ajod.v7i0.273

32. Needs of families of children with intellectual and developmental disabilities in Addis Ababa
Heather M. Aldersey, Ansha N. Ahmed, Haben N. Tesfamichael, Natasha Lotoski
African Journal of Disability  vol: 9  year: 2020  
doi: 10.4102/ajod.v9i0.735

33. Challenges and support needs of parents of children with developmental disabilities (DD) in Accra, Ghana
M. Oti-Boadi, A. Osei-Tutu, C.C. Mate-Kole
Research in Developmental Disabilities  vol: 128  first page: 104274  year: 2022  
doi: 10.1016/j.ridd.2022.104274

34. Determinants of parental quality of life and resilience: a study of families with neurodevelopmentally disordered children
Mabel Oti-Boadi, Francis D. Boateng, Kenneth Owusu Ansah
International Journal of Developmental Disabilities  first page: 1  year: 2024  
doi: 10.1080/20473869.2024.2384712

35. Discourse of needs versus discourse of rights: family caregivers responding to the sexuality of young South African adults with intellectual disability
Callista K. Kahonde, Judith McKenzie, Nathan J. Wilson
Culture, Health & Sexuality  vol: 21  issue: 3  first page: 278  year: 2019  
doi: 10.1080/13691058.2018.1465202

36. Family Quality of Life in the Democratic Republic of the Congo
Heather M. Aldersey, Grace L. Francis, Shana J. Haines, Chun Yu Chiu
Journal of Policy and Practice in Intellectual Disabilities  vol: 14  issue: 1  first page: 78  year: 2017  
doi: 10.1111/jppi.12189

37. Aligning a training curriculum with local needs: Use of an advisory board
Renee A Hepperlen, Paula Rabaey, Esther Ngulube, Jennifer Biggs, Donna DeGracia, Mary O Hearst
International Social Work  vol: 65  issue: 6  first page: 1264  year: 2022  
doi: 10.1177/0020872820915267

38. Experiences of Parents as Caregivers for Children Diagnosed With Mild Intellectual Disability: An IPA Study
Maheen Bint Rabbani, Sumbal Nawaz
Sage Open  vol: 16  issue: 1  year: 2026  
doi: 10.1177/21582440251409688

39. Community participation of families of children with profound intellectual and multiple disabilities in South Africa
Judith Anne McKenzie, Callista Kahonde, Karen Mostert, Heather Michelle Aldersey
Journal of Applied Research in Intellectual Disabilities  vol: 34  issue: 2  first page: 525  year: 2021  
doi: 10.1111/jar.12818

40. Using community‐based interventions to reduce public stigma of children with disabilities: A feasibility study
Renee A. Hepperlen, Jennifer Biggs, Watson Mwandileya, Paula Rabaey, Esther Ngulube, Mary O. Hearst
Journal of Applied Research in Intellectual Disabilities  vol: 34  issue: 6  first page: 1499  year: 2021  
doi: 10.1111/jar.12894

41. Caring for Adults with Intellectual Disability: The Perspectives of Family Carers in South Africa
Judith McKenzie, Roy McConkey
Journal of Applied Research in Intellectual Disabilities  vol: 29  issue: 6  first page: 531  year: 2016  
doi: 10.1111/jar.12209

42. Exploring the Lived Experiences of Mothers of Children With Intellectual Disability in Ghana
Mabel Oti-Boadi
Sage Open  vol: 7  issue: 4  year: 2017  
doi: 10.1177/2158244017745578

43. The Experiences of Ageing Parents of Young Adults with Autism Spectrum Disorders (ASD)
Mabel Oti-Boadi, Kwaku Oppong Asante, Esther Kweiki Malm
Journal of Adult Development  vol: 27  issue: 1  first page: 58  year: 2020  
doi: 10.1007/s10804-018-09325-6

44. Exploring caregiver experiences of stigma in Ghana:They insult me because of my child
Maria Zuurmond, Janet Seeley, Gifty Gyamah Nyant, Marjolein Baltussen, Jedidia Abanga, Sarah Polack, Sarah Bernays, Tom Shakespeare
Disability & Society  vol: 37  issue: 5  first page: 827  year: 2022  
doi: 10.1080/09687599.2020.1851172

45. Caring for a child with a disability in a Zambian community: A study using photo‐elicitation
Renee A. Hepperlen, Paula Rabaey, Amanda Ament‐Lemke, Hayley Manley
Child: Care, Health and Development  vol: 47  issue: 4  first page: 422  year: 2021  
doi: 10.1111/cch.12851