1. Health-Related Quality of Life and Family Functioning of Primary Caregivers of Children with Cerebral Palsy in Malaysia
Kelvin Ying, Hans Van Rostenberghe, Garry Kuan, Mohammad Haris Amirul Mohd Yusoff, Siti Hawa Ali, Nik Soriani Yaacob
International Journal of Environmental Research and Public Health  vol: 18  issue: 5  first page: 2351  year: 2021  
doi: 10.3390/ijerph18052351

2. Acceptability and feasibility of a group-based intervention to improve outcomes for children at risk for developmental delays in Kenya: A piloted randomized trial
Megan S McHenry, Brianna Alex, Anna Roose, Catherine Raciti, Eren Oyungu, Ananda R Ombitsa, Cleophas Cherop, Beatrice Kaniaru, Carolyne Cherop, Chandy C John, Rachel C Vreeman
Journal of Child Health Care  vol: 29  issue: 4  first page: 975  year: 2025  
doi: 10.1177/13674935241261744

3. Building inclusive early learning environments for children with a disability in low-resource settings: Insights into challenges and opportunities from rural Zimbabwe
Joice Tafirenyika, Samson Mhizha, Godfrey Ejuu
Frontiers in Education  vol: 8  year: 2023  
doi: 10.3389/feduc.2023.1029076

4. The Physical Health of Caregivers of Children With Life-Limiting Conditions: A Systematic Review
Julie Hartley, Myra Bluebond-Langner, Bridget Candy, Jonathan Downie, Ellen M Henderson
Pediatrics  vol: 148  issue: 2  year: 2021  
doi: 10.1542/peds.2020-014423

5. Mothers as facilitators for a parent group intervention for children with Congenital Zika Syndrome: Qualitative findings from a feasibility study in Brazil
Tracey Smythe, Monica Matos, Julia Reis, Antony Duttine, Silvia Ferrite, Hannah Kuper, Shelina Visram
PLOS ONE  vol: 15  issue: 9  first page: e0238850  year: 2020  
doi: 10.1371/journal.pone.0238850

6. Caregiver’s adherence to out-patient rehabilitation program of children with cerebral palsy in a tertiary government hospital
Kreza Geovien G. Ligaya, Cynthia D. Ang-Muñoz, Monalisa L. Dungca, Joycie Eulah H. Abiera
Philippine Journal of Health Research and Development  vol: 29  issue: 2  first page: 25  year: 2025  
doi: 10.4103/PJHRD_20252902_25

7. A critical evaluation of the effectiveness of interventions for improving the well-being of caregivers of children with cerebral palsy: a systematic review protocol
Jermaine M. Dambi, Jennifer Jelsma, Tecla Mlambo, Matthew Chiwaridzo, Cathrine Tadyanemhandu, Mildred T. Chikwanha, Lieselotte Corten
Systematic Reviews  vol: 5  issue: 1  year: 2016  
doi: 10.1186/s13643-016-0287-4

8. Stakeholder experiences, attitudes and perspectives on inclusive education for children with developmental disabilities in sub-Saharan Africa: A systematic review of qualitative studies
Elisa Genovesi, Cecilia Jakobsson, Lena Nugent, Charlotte Hanlon, Rosa A Hoekstra
Autism  vol: 26  issue: 7  first page: 1606  year: 2022  
doi: 10.1177/13623613221096208

9. Mapping play-based interventions for children with disabilities in LMICs: a scoping review on cultural relevance, implementation, and impact
Veronika Reichenberger, Alberta S.J. van der Watt, Quinette Louw, Soraya Seedat, Tracey Smythe
eClinicalMedicine  vol: 88  first page: 103444  year: 2025  
doi: 10.1016/j.eclinm.2025.103444

10. Akwenda intervention programme for children and youth with cerebral palsy in a low-resource setting in sub-Saharan Africa: protocol for a quasi-randomised controlled study
Gillian Saloojee, Francis Ekwan, Carin Andrews, Diane L Damiano, Angelina Kakooza-Mwesige, Hans Forssberg
BMJ Open  vol: 11  issue: 3  first page: e047634  year: 2021  
doi: 10.1136/bmjopen-2020-047634

11. Daily Life and Challenges Faced By Households With Permanent Childhood Developmental Disability in Rural Tanzania – A Qualitative Study
Joëlle Castellani, Omari Kimbute, Charles Makasi, Zakayo E. Mrango, Aggie T. G. Paulus, Silvia M. A. A. Evers, Pip Hardy, Tony Sumner, Augusta Keiya, Borislava Mihaylova, Mohammad Abul Faiz, Melba Gomes
Journal of Developmental and Physical Disabilities  vol: 34  issue: 3  first page: 471  year: 2022  
doi: 10.1007/s10882-021-09809-6

12. Family Caregivers' Burden and Coping With Caring for Children With Cerebral Palsy: A Qualitative Study in a Low‐Resourced Context, Ghana
Asongo Akwobi Kisinna, Lillian Akorfa Ohene, Priscilla A. A. Attafuah
Child: Care, Health and Development  vol: 51  issue: 4  year: 2025  
doi: 10.1111/cch.70141

13. Psychosocial experiences of mothers caring for children with cerebral palsy in the eThekwini district
Sibongile Seroke, Sipho W. Mkhize
Health SA Gesondheid  vol: 28  year: 2023  
doi: 10.4102/hsag.v28i0.2072

14. Anxiety, Depression, and Quality of Life of Caregivers of Children with Cerebral Palsy versus Those with Typically Developing Children
Priya Kumari, Rimple Sharma, Sheffali Gulati, Rachna Bhargava, Pragya Pathak
Annals of Child Neurology  vol: 33  issue: 2  first page: 66  year: 2025  
doi: 10.26815/acn.2024.00759

15. The Association Between Functional Independence in Children With Cerebral Palsy And Parental Perceptions of Family-Related Problems and Pessimism
Çiğdem Çekmece, Begüm Çapa Tayyare, Ilgın Sade
Kocaeli Üniversitesi Sağlık Bilimleri Dergisi  vol: 11  issue: 3  first page: 132  year: 2025  
doi: 10.30934/kusbed.1683714

16. Title: Caring for Children with Cerebral Palsy: A Challenge to Caregivers in Rural Areas of South Africa
Duppy Manyuma, Mary Maluleke, Ndidzulafhi Selina Raliphaswa, Thingahangwi Cecilia Masutha, Mphedziseni Esther Rangwaneni, Takalani Eldah Thabathi, Ndivhaleni Robert Lavhelani
Children  vol: 10  issue: 3  first page: 440  year: 2023  
doi: 10.3390/children10030440

17. Impact of the Akwenda Intervention Program for cerebral palsy on caregiver‐perceived burden, stress, and psychosocial functioning: A cluster‐randomized trial in Uganda
Elizabeth Asige, Gillian Saloojee, Godfrey Wanjala, Carin Andrews, Lukia H. Namaganda, Angelina Kakooza‐Mwesige, Katherine Albus, Diane L. Damiano, Hans Forssberg
Developmental Medicine & Child Neurology  vol: 67  issue: 9  first page: 1206  year: 2025  
doi: 10.1111/dmcn.16368

18. Shared storybook reading interactions between children with complex communication needs and their caregivers
Refilwe Elizabeth Morwane, Shakila Dada, Juan Bornman
South African Journal of Education  vol: 39  issue: 2  first page: 1  year: 2019  
doi: 10.15700/saje.v39n2a1695

19. Known by the Children’s Condition: Associative Stigma Among Family Carers of Children with Cerebral Palsy
Mavis Dako-Gyeke, Doris Akyere Boateng, Abigail Adubea Mills, Richard Baffo Kodom, Jamal Appiah-Kubi
Global Social Welfare  vol: 8  issue: 4  first page: 379  year: 2021  
doi: 10.1007/s40609-021-00203-w

20. The state of evidence on the health outcomes and support needs of family caregivers of children with Cerebral Palsy in Sub-Saharan Africa: a scoping review
Melkitu Melak, Afolasade Fakolade, Solomon Mekonnen, Adhanom Baraki, Amanda Ross-White, Beata Batorowicz
Disability and Rehabilitation  vol: 47  issue: 21  first page: 5435  year: 2025  
doi: 10.1080/09638288.2025.2472984

21. In Hospital Experiences of Mothers of Children with Major External Birth Defects During Hospitalisation at a Tertiary Hospital in South Western Uganda
Kalubi Peters, Ochora Moses, Keneema Olive, Nampijja Dorah, Kyasimire Lydia, Kyoyagala Stella
International Journal of Innovative Science and Research Technology (IJISRT)  first page: 1730  year: 2024  
doi: 10.38124/ijisrt/IJISRT24FEB1520

22. Mothers’ challenges and experiences of children with cerebral palsy: a qualitative meta-synthesis
Meng-Yun Peng, Yi-Fu Lu
Frontiers of Nursing  vol: 11  issue: 2  first page: 169  year: 2024  
doi: 10.2478/fon-2024-0018

23. Children With Cerebral Palsy And Family Functioning In Greece And Italy
Assimina Tsibidaki
International Journal of Disability, Development and Education  vol: 72  issue: 6  first page: 983  year: 2025  
doi: 10.1080/1034912X.2024.2370796

24. Facilitators and barriers to the adherence of physiotherapy clinic attendance and home programme by caregivers of children with cerebral palsy in Blantyre, Malawi
Promise Mtima-Jere, Shadreck Msowoya, Violet Chinyamu, Triza Kanduku, Rebecca Turkel, Anderson Mughogho
Developmental Neurorehabilitation  vol: 28  issue: 2-3  first page: 103  year: 2025  
doi: 10.1080/17518423.2025.2526356

25. Feeding and swallowing in cerebral palsy: Caregiver burden, quality of life and support needs
Raquel Lewis, Michal Harty, Vivienne Norman
South African Journal of Communication Disorders  vol: 72  issue: 2  year: 2025  
doi: 10.4102/SAJCD.v72i2.1124

26. A support programme for caregivers of children with disabilities in Ghana: Understanding the impact on the wellbeing of caregivers
Maria Zuurmond, Gifty Nyante, Marjolein Baltussen, Janet Seeley, Jedidia Abanga, Tom Shakespeare, Martine Collumbien, Sarah Bernays
Child: Care, Health and Development  vol: 45  issue: 1  first page: 45  year: 2019  
doi: 10.1111/cch.12618

27. An evaluation of psychometric properties of caregiver burden outcome measures used in caregivers of children with cerebral palsy: a systematic review protocol
Jermaine M. Dambi, Jennifer Jelsma, Tecla Mlambo, Matthew Chiwaridzo, Nyaradzai Dangarembizi-Munambah, Lieselotte Corten
Systematic Reviews  vol: 5  issue: 1  year: 2016  
doi: 10.1186/s13643-016-0219-3

28. Outcome of Community-Based Early Intervention and Rehabilitation for Children with Cerebral Palsy in Rural Bangladesh: A Quasi-Experimental Study
Tasneem Karim, Mohammad Muhit, Israt Jahan, Claire Galea, Catherine Morgan, Hayley Smithers-Sheedy, Nadia Badawi, Gulam Khandaker
Brain Sciences  vol: 11  issue: 9  first page: 1189  year: 2021  
doi: 10.3390/brainsci11091189

29. Participation of fathers and siblings in home rehabilitation programmes for children with neuro-developmental delay: a scoping review
Precious Madzimbe, Soraya Maart, Lieselotte Corten, Jermaine Dambi
BMC Pediatrics  vol: 24  issue: 1  year: 2024  
doi: 10.1186/s12887-024-05119-w

30. Validity and Reliability of the Caregiving Difficulty Scale in Mothers of Children with Cerebral Palsy
Eun-Young Park
International Journal of Environmental Research and Public Health  vol: 18  issue: 11  first page: 5689  year: 2021  
doi: 10.3390/ijerph18115689

31. Neglect of Psychological Care for Children with Cerebral Palsy and Their Families and Its Impact on Their Occupational Engagement in Saudi Arabia
Safaa M. Elkholi, Salwa S. Awad, Madawi H. Alotaibi
Medicina  vol: 60  issue: 8  first page: 1216  year: 2024  
doi: 10.3390/medicina60081216

32. Living with disabled children in Malawi: Challenges and rewards
Grete Barlindhaug, Eric Umar, Margaret Wazakili, Nina Emaus
African Journal of Disability  vol: 5  issue: 1  year: 2016  
doi: 10.4102/ajod.v5i1.254

33. The health-seeking experiences of caregivers of children with cerebral palsy in Thembisa, South Africa: shifting from the voice of medicine to the voice of the caregiver
Cynthia Sawasawa, Jennifer Watermeyer, Khetsiwe Masuku
Disability and Rehabilitation  vol: 48  issue: 3  first page: 722  year: 2026  
doi: 10.1080/09638288.2025.2513043

34. Effective Factors on Caring Role of Parents of Children with Cerebral Palsy
Nasrin Alaee, Frahnaz Mohammadi-Shahboulaghi, Hamidreza Khankeh, Sima Mohammadkhan Kermanshahi
Avicenna Journal of Nursing and Midwifery Care  vol: 27  issue: 1  first page: 55  year: 2019  
doi: 10.30699/ajnmc.27.1.55

35. A comparative study of socioeconomic status, perceived social support and psychological distress of mothers of children with and without disabilities
Reem Mohammed Alwhaibi, Uzma Zaidi, Ebtesam Alzeiby, Adel Alhusaini
International Journal of Therapy and Rehabilitation  vol: 26  issue: 9  first page: 1  year: 2019  
doi: 10.12968/ijtr.2018.0019

36. Fathers' experiences of caring for children living with cerebral palsy: A qualitative study in a low resourced socioeconomic context, Ghana
Lucy Selorm Bentum, Lillian Akorfa Ohene, Veronica Adwoa Agyare, Luke Laari, Menford Owusu Ampomah
Journal of Pediatric Nursing  vol: 73  first page: e100  year: 2023  
doi: 10.1016/j.pedn.2023.07.019

37. Simple ideas that work: Celebrating development in persons with profound intellectual and multiple disabilities
Ann Bullen, Rosemary Luger, Debbie Prudhomme, Martha Geiger
African Journal of Disability  vol: 7  year: 2018  
doi: 10.4102/ajod.v7i0.273

38. Adapting a Participatory Group Programme for Caregivers of Children with Complex Neurodisability from Low-, Middle-Income Countries to a High-Income Setting: Moving from “Baby Ubuntu” to “Encompass”
Kirsten Prest, Kirsten Barnicot, Catherine Hurt, Frances Badenhorst, Aleksandra Borek, Melanie Whyte, Phillip Harniess, Alea Jannath, Rachel Lassman, Christopher Morris, Rachel Osbourne, Tracey Smythe, Cally J. Tann, Keely Thomas, Emma Wilson, Angela Harden, Michelle Heys
International Journal of Environmental Research and Public Health  vol: 22  issue: 7  first page: 1144  year: 2025  
doi: 10.3390/ijerph22071144

39. Validity of the Friedrich Short Form of the Questionnaire on Resources and Stress in Parents of Individuals with Autism Spectrum Disorder
Eun-Young Park
International Journal of Environmental Research and Public Health  vol: 18  issue: 22  first page: 12174  year: 2021  
doi: 10.3390/ijerph182212174

40. The level and factors associated with caregiver experience among parents of children with cerebral palsy: a cross-sectional study in Southwest China
Xiaoying Zhong, Champa J. Wijesinghe
Frontiers in Public Health  vol: 13  year: 2025  
doi: 10.3389/fpubh.2025.1482011

41. Caregiver burden in cerebral palsy: Validity and reliability of the Turkish version of caregiver difficulties scale
Emel Atar, Erdal Dilekçi, Tuğba Özsoy Ünübol, Nermin Gündüz, Murat Atar, Ayhan Aşkın
Child: Care, Health and Development  vol: 48  issue: 3  first page: 465  year: 2022  
doi: 10.1111/cch.12947

42. Mothers’ perspectives on the influences shaping their early experiences with infants at risk of cerebral palsy in India
Nataya Branjerdporn, Emma Crawford, Jenny Ziviani, Roslyn N. Boyd, Katherine Benfer, Leanne Sakzewski
Research in Developmental Disabilities  vol: 113  first page: 103957  year: 2021  
doi: 10.1016/j.ridd.2021.103957

43. Physical Exercises in Combination with Botulinum Toxin in Treating Children with Cerebral Palsy: A Literature Review
Abhishek Sharma, Sakshi Vats, Aksh Chahal
Journal of Lifestyle Medicine  vol: 12  issue: 3  first page: 138  year: 2022  
doi: 10.15280/jlm.2022.12.3.138

44. The Barriers to Caring for a Child Living with Cerebral Palsy (CP) in Rural Limpopo, South Africa
Ngokwana Rachamose, Clare Harvey
Disabilities  vol: 5  issue: 1  first page: 11  year: 2025  
doi: 10.3390/disabilities5010011

45. Effects of An Educational Programme on Knowledge of Cerebral Palsy among Informal Caregivers of Children Presenting at Selected Physiotherapy Clinics in Ibadan
Opemipo Omolara Ajayi, Margaret Bukola Fatudimu, Talhatu Kolapo Hamzat
European Journal of Medical and Health Sciences  vol: 4  issue: 2  first page: 57  year: 2022  
doi: 10.24018/ejmed.2022.4.2.1275

46. Lived experiences of mothers caring for children with cerebral palsy in Rwanda: a phenomenological study
Jean Paul Niyigaba, Thierry Claudien Uhawenimana, Vedaste Bagweneza, Judith Mbarushimana, Winifride Murekatete, Larissa Flave Ishimwe
BMC Pediatrics  vol: 26  issue: 1  year: 2026  
doi: 10.1186/s12887-026-06538-7

47. ‘ It shuttered down our hearts ’: the mental health of caregivers of children with cerebral palsy in rural Limpopo, South Africa
Ngokwana Rachamose, Clare Harvey
South African Journal of Psychology  vol: 55  issue: 2  first page: 217  year: 2025  
doi: 10.1177/00812463251315869

48. Resilience and challenges: A qualitative exploration of Jordanian Mothers' experiences with children who have cerebral palsy
Khulood Kayed Shattnawi, Esraa Ali Balbaa
Journal of Pediatric Nursing  vol: 78  first page: e314  year: 2024  
doi: 10.1016/j.pedn.2024.07.020

49. Family quality of life for families of children with disabilities in African contexts: a scoping review
Julia Jansen-van Vuuren, Reshma Parvin Nuri, Ansha Nega, Beata Batorowicz, Rosemary Lysaght, Heather Michelle Aldersey
Quality of Life Research  vol: 31  issue: 5  first page: 1289  year: 2022  
doi: 10.1007/s11136-021-02994-z

50. Human‐Centered Design of a Contextualized Service Delivery Model for Families of Infants With Major Congenital Anomalies in Kenya
Audrey Chepkemoi, Molly McPheron, Violet Naanyu, James G. Carlucci, Caroline Kerich, Winnie Matelong, Harold Kooreman, Megan S. McHenry, Caitlin Bernard, Marylydia Kiano, Roselyn Midiwo, Beverly Musick, Constantin T. Yiannoutsos, Kara Wools‐Kaloustian, Rena C. Patel, Edwin Were, John M. Humphrey
Birth Defects Research  vol: 118  issue: 2  year: 2026  
doi: 10.1002/bdr2.70014

51. Use of patient-reported outcomes in low-resource settings — lessons from the development and validation of the Zimbabwean Caregiver Burden Scale
Jermaine M. Dambi, Jennifer Jelsma, Tecla Mambo, Matthew Chiwaridzo
European Journal of Physiotherapy  vol: 19  issue: sup1  first page: 47  year: 2017  
doi: 10.1080/21679169.2017.1381313

52. Family caregivers’ experience of care with a child with cerebral palsy: the lived experiences and challenges of caregivers in a resource-limited setting in northern Ghana
Mavis Mallory Mwinbam, Joseph Ngmenesegre Suglo, Yaa Nyarko Agyeman, Margaret Wekem Kukeba
BMJ Paediatrics Open  vol: 7  issue: 1  first page: e001807  year: 2023  
doi: 10.1136/bmjpo-2022-001807

53. “I'm not sad anymore, I'm proud to have such a child”: The experiences of caregivers of dependents with cerebral palsy living in Greece
Angeliki Bistaraki, Nikos Stefanopoulos, Panagiotis Kiekkas, Dimitra Stamatopoulou, Michael Igoumenidis
Journal of Pediatric Nursing  vol: 81  first page: 89  year: 2025  
doi: 10.1016/j.pedn.2024.12.007

54. The efficacy of appropriate paper-based technology for Kenyan children with cerebral palsy
Catherine Barton, John Buckley, Pauline Samia, Fiona Williams, Suzan R. Taylor, Rachel Lindoewood
Disability and Rehabilitation: Assistive Technology  vol: 17  issue: 8  first page: 927  year: 2022  
doi: 10.1080/17483107.2020.1830442

55. Quality of Life and Socioeconomic Status: A Comparative Study among Mothers of Children with and without Disabilities in Saudi Arabia
Reem Mohammed Alwhaibi, Uzma Zaidi, Ibtisam Alzeiby, Adel Alhusaini
Child Care in Practice  vol: 26  issue: 1  first page: 62  year: 2020  
doi: 10.1080/13575279.2018.1512951

56. Caregiver’s perspectives on facilitators and barriers of active participation in cerebral palsy rehabilitation in North West Nigeria: a qualitative study
Auwal Abdullahi, Auwal Isah
BMC Health Services Research  vol: 20  issue: 1  year: 2020  
doi: 10.1186/s12913-020-05487-w