Review Article

Intellectual disability rights and inclusive citizenship in South Africa: What can a scoping review tell us?

Charlotte Capri, Lameze Abrahams, Judith McKenzie, Ockert Coetzee, Siyabulela Mkabile, Manuel Saptouw, Andrew Hooper, Peter Smith, Colleen Adnams, Leslie Swartz
African Journal of Disability | Vol 7 | a396 | DOI: https://doi.org/10.4102/ajod.v7i0.396 | © 2018 Charlotte Capri, Lameze Abrahams, Judith McKenzie, Ockert Coetzee, Siyabulela Mkabile, Manuel Saptouw, Andrew Hooper, Peter Smith, Colleen Adnams, Leslie Swartz | This work is licensed under CC Attribution 4.0
Submitted: 30 May 2017 | Published: 25 April 2018

About the author(s)

Charlotte Capri, Department of Psychiatry and Mental Health, University of Cape Town, South Africa and Alexandra Hospital, Western Cape Government, South Africa
Lameze Abrahams, Department of Psychiatry and Mental Health, University of Cape Town, South Africa and Lentegeur Psychiatric Hospital, Department of Health, South Africa
Judith McKenzie, Department of Health & Rehabilitation Sciences, University Of Cape Town, South Africa
Ockert Coetzee, Department of Psychiatry and Mental Health, University of Cape Town, South Africa and Alexandra Hospital, Western Cape Government, South Africa
Siyabulela Mkabile, Department of Psychiatry and Mental Health, University of Cape Town, South Africa and Lentegeur Psychiatric Hospital, Department of Health, South Africa
Manuel Saptouw, Lentegeur Psychiatric Hospital, Department of Health, South Africa
Andrew Hooper, Lentegeur Psychiatric Hospital, Department of Health, South Africa
Peter Smith, Department of Psychiatry and Mental Health, University of Cape Town, South Africa and Lentegeur Psychiatric Hospital, Department of Health, South Africa
Colleen Adnams, Department of Psychiatry and Mental Health, University of Cape Town, South Africa
Leslie Swartz, Department of Psychology, Stellenbosch University, South Africa


Share this article

Bookmark and Share

Abstract

Background: Intellectual disability (ID) is the most prevalent disability in the world. People with intellectual disability (PWID) frequently experience extreme violations of numerous human rights. Despite greater prevalence in South Africa than in high-income countries, most ID research currently comes from the Global North. This leaves us with few contextually sensitive studies to draw from to advance inclusive citizenship.

Objectives: Our scoping review aims to investigate pertinent ID rights issues in South Africa, synthesise quantitative and qualitative studies, and provide a synopsis of available evidence on which to base future work. We aim to clarify key concepts, address gaps in the literature and identify opportunities for further research.

Method: We followed strict eligibility criteria. Medical subject heading terms were entered into seven databases. Seven reviewers worked independently, two per paper. Quantitative and qualitative data extraction forms were designed. We followed Preferred Reporting Items for Systematic Review and Meta-Analysis (PRISMA) guidelines and registered a protocol. An inductive approach enabled a thematic analysis of selected studies.

Results: By following PRISMA guidelines, 82 studies were assessed for eligibility of which 59 were included. Ten sub-themes were integrated into four main themes: the right not to be discriminated against, the right to psychological and bodily integrity, the right to accommodating services and challenges to rights implementation.

Conclusion: People with intellectual disability face compound difficulties when trying to assert their constitutionally entitled rights. This ongoing project requires serious commitment and action. Statutory obligations to nurture every South African’s human rights naturally extend to PWID and their supporters who forge ahead in a disabling environment.


Keywords

People With Intellectual Disability (PWID); South Africa; human rights; citizenship; advocacy; scoping review

Metrics

Total abstract views: 246
Total article views: 491

 

Crossref Citations

1. A psychodynamic understanding of parental stress among parents of children with learning and developmental disability and behaviours that challenge
Ockert Coetzee, Colleen Adnams, Leslie Swartz
Psychodynamic Practice  first page: 1  year: 2018  
doi: 10.1080/14753634.2018.1526106